A long time ago before I did much of anything as an adult
I was a French major at the University of Minnesota so I made these
associations.
My brother Jake is about 2 ½ years older than me. My
sister Jean is between us so we weren’t all that close in age. I started out to
write a humorous post here but in order to put the humor in context, I have to
write about Jake and that is a sad story. The summer I turned 18 and was about
to head off to the University to major in French, Jake was discharged from the
Navy because he was disabled. He was diagnosed with paranoid schizophrenia
which I knew about at the time because I had just completed a 1 semester high
school class in psychology. When I read the letter my mother showed me even I
could diagnose him and it was like I lost him then. That was 49 years ago. Fast
forward to today. His life took a turn for the worse this year when he was
transferred from the VA hospital in St. Cloud, MN where he has spent much of
his life, to the Security Hospital in St. Peter, MN. He has not done well there
and developed pneumonia and was hospitalized in Mankato, MN about an hour’s
drive south of Minneapolis. They managed to save his life and after several
days on a respirator in ICU he was transferred to another room where he is
being maintained with oxygen, a feeding tube, fluids by IV, a catheter and is
completely bedridden. He is conscious and can communicate and knows what’s
going on.
So this is the sad situation that brought my sister Kay
and me to go to Mankato to see him and find out what he wants for his life. Not
surprisingly, it turns out that he just wants to get out of it, life that is.
He has a court appointed guardian and can’t make his own health care decisions
so one of our goals was to find out what he wants so we could communicate that
to his guardian. We did that and we spent several hours there with him because
you see I didn’t lose him 49 years ago and even though many of my experiences
growing up with him were pretty negative as is the case with just about all of
my 12 brothers and sisters he was one of the first people that I knew in my
life. It made me very sad and I wished that I could at least help him be more
comfortable.
When Kay and I arrived at his room, we found him as I’ve
described above. A young man sitting in the corner of the room is a staff
person from St. Peter Security Hospital. He has someone with him 24/7. I guess
because they think because of his past behavior that he might pose a threat to
hospital personnel. Anyway, both this young man and the one who came to relieve
him were both kind and respectful towards Jake and us. It’s probably good for
Jake to have someone with him so I won’t complain about them being there. They
are also helpful and know what’s going on. When Jake said that he wanted to sit
in a chair, the nice young man informed us that physical therapy would be there
within the hour and they would get Jake up and sit him in a chair. We tried to
make small talk but Jake wasn’t interested in much of anything except sitting
up so we just waited for the thinking he might do better once he was sitting
up. So we waited. Jake dozed off and Kay went back to the car to get the
crossword puzzle we had been working on. When she came back she said that she
took the stairs down and that she was worried because there was a sign on door
at each landing that said “NO EXIT”. We waited. Jake began asking for Ashley
whose name was on the white board as his nurse. We paged her and Heidi (the
second name on the board) showed up. She said that Ashley was at lunch and
would be back in an hour. Jake told her that he wanted to sit in a chair. She
said that PT was going to be there soon to help him sit up. So we waited some
more. Jake continued to tell us to get Ashley or Heidi from time to time and we
told him that someone would be there soon. Eventually I went to the nurse’s
station and asked. They said that they were trying to locate a chair he could
sit in so I went back and reported that to Jake. And we waited. These things
happened repeatedly over the course of the 3 hours we were there. PT never did
show up and we never did get to meet Ashley. The St. Peter’s staff shift
changed and eventually we left because it was getting late. As we walked down
the stairs and I saw the NO EXIT sign on every door down 4 flights of stairs it
appeared there was no way out. I said to Kay, “Oh my God, we’ve been trapped in
an existential play!” And I remembered being a French major in college reading
existential plays, “No Exit” by Jean Paul Sartre, and “Waiting for Godot” by
Albert Camus Samuel Beckett. Google up the plays and read the Cliff Notes or the whole play to
understand what we went through that day.
Judy, our condolences for what you’re going through. Such times are hard for everyone. One lesson we learned when Peg’s dad was in the hospital is that you always need someone to advocate for the patient. Being told, “Someone will be here in an hour” often escalate into interminable delays and the advocate needs to get up, and keep harassing hospital personnel until you get done what needs getting done. Jake can’t do that himself. And answers like “trying to locate” a chair or a person or whatever simply aren’t satisfactory — but the staff will always give you a pat answer and trust the system to ultimately take care of the problem. Except you know as well as we that sometimes the system doesn’t work.
ReplyDeleteWe’ll see you in Palmdale in a couple months.
Thank you Peter for your kind thoughts and I know you are right about hospitals. Understaffed etc.but there are no excuses. Looking forward to seeing you too.
ReplyDeleteThank you to my brother Doug for ponting out that Beckett wrote "Waiting for Godot". Camus wrote "The Stranger" both of which I read in French 48 years ago or so.
ReplyDeleteThank you to my brother Doug for ponting out that Beckett wrote "Waiting for Godot". Camus wrote "The Stranger" both of which I read in French 48 years ago or so.
ReplyDeleteThank you Peter for your kind thoughts and I know you are right about hospitals. Understaffed etc.but there are no excuses. Looking forward to seeing you too.
ReplyDeleteIt's funny, I was just thinking about you and Don & family just last night. My dad spent some time between Saint's and Memorial before he passed back in '05. There were a lot of waiting for people to show up moments. I hope everyone is doing well. Later.... Andy Trello
ReplyDeleteIt's funny, I was just thinking about you and Don & family just last night. My dad spent some time between Saint's and Memorial before he passed back in '05. There were a lot of waiting for people to show up moments. I hope everyone is doing well. Later.... Andy Trello
ReplyDelete